Sevanah's Story

 On April 1, 2015 these hopes and dreams were shattered after an MRI revealed Diffuse Intrinsic Pontine Glioma (often referred to as DIPG). With a 0% survival rate this inoperable, fast-growing brainstem tumor takes a healthy, active child and begins to shut down vital physical functions. Most succumb to DIPG within 9 months of diagnosis and 90% die within 2 years. No new advances in treatment have been made in over 60 years due to lack of funding. 

Our Sevanah lost her battle September 4th, 2015.
After being diagnosed with DIPG Sevanah declared, “When I get better, we can help other kids with DIPG!” Even in all her suffering, Sevanah still sang and laughed, hand-crafted special gifts for everyone and wrote her playful Monkey Crew Tales. A special girl with a heart of gold, forever missed. 

The absolute worse thing that can happen to a mother is to outlive her child. Sevanah’s thoughtful, kind nature and her desire to help other children is the driving force behind her family’s crusade against DIPG and a search for a cure.

Since Sevanah's passing, we have partnered with Brain Tumour Foundation of Canada for annual fundraisers like our Family Fun Days and our SuperKids Runs to raise money for Pediatric Brain Tumour Research. This is our way of honoring Sevanah. Our hope is that some day a cure for DIPG will be found so that no other parent ever has to lose their own 'Baby Boo.'